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Archive for November, 2008

I love you, mum

Posted by stephcolin on Nov-26-2008
Elke Wisby

Elke Wisby

I love you, mum: First words of brain-damaged girl, 6, given power of speech by laser which tracks her eye movements

By Daily Mail Reporter
Last updated at 1:53 AM on 01st November 2008

A severely handicapped little girl who cannot walk or talk has used a machine to tell her mother for the first time: ‘I love you.’

Six-year-old Elke Wisbey, who was born brain-damaged, has been able to communicate with her family by using a high-tech gadget which tracks her eye movements.

The £17,000 MyTobii Smartbox machine from Sweden detects which icons Elke is looking at by using tiny lasers.

When her eyes settle on an icon on the screen of the Smartbox, a pre-programmed voice speaks the word or phrase for her.

Just a few days after setting up the equipment, Elke’s parents, Glynnis and Matt Wisbey, described how their daughter started using her eyes to repeat the words ‘I love you’ over and over again.

Mrs. Wisbey, 43, who also has a son, Galahad, aged nine, said: ‘I thought it was stuck and then I realised what she was saying.

‘She was looking at the “I love you” icon and I couldn’t believe it, she kept doing it.

‘I said to Elke “are you telling Daddy you love him?” and she pointed at the icon “yes”.

‘It really choked me up, made me really emotional. I’m still emotional when I think about it.

‘It was quite emotional. It is mind-blowing really. We have gone from somebody not being able to communicate to this.

‘We didn’t think Elke would ever be able to tell us how she was feeling, and now she can. This will be amazing for us, absolutely phenomenal.’

Readers of a local newspaper raised money to buy the specially-adapted machine for the family from Bearsted, Kent.

The Wisbey family are all learning how to help Elke use the machine, but the little girl, who will never be able to walk or talk for herself or feed herself, has mastered it more quickly than any of them.

She has already got to grips with a number of words and phrases and can also play games and browse the internet with it.

Mrs Wisbey said: ‘Elke is an absolute delight to know. She smiles when she recognises people and places and she showers hugs on those she likes best.

‘It’s going to change our lives completely. We’ve been overwhelmed by people’s support, it takes some people years to raise this kind of money and we’ve done it in a summer.’

[source]

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Alex’s Lemonade Stand

Posted by stephcolin on Nov-25-2008
Alexs Lemonade Stand

Fighting childhood cancer one cup at a time.

In 2000, a 4 year old cancer patient named Alexandra “Alex” Scott announced a seemingly simple idea -she was holding a lemonade stand to raise money to help “her doctors” find a cure for kids with cancer. The idea was put into action by Alex and her older brother, Patrick, when they set up the first “Alex’s Lemonade Stand for Childhood Cancer” on their front lawn in July of 2000.

For the next four years, despite her deteriorating health, Alex held an annual lemonade stand to raise money for childhood cancer research. Following her inspirational example, thousands of lemonade stands and other fundraising events have been held across the country by children, schools, businesses, and organizations, all to benefit Alex’s Lemonade Stand Foundation for childhood cancer. On August 1st, 2004, Alex died peacefully at the age of 8 — she had raised over $1 million for childhood cancer research in her short lifetime.

Alex’s spirited determination to raise awareness and money for all childhood cancer while she bravely fought her own deadly battle with cancer has inspired thousands of people, from all walks of life to raise money and give to her cause. Alex’s family and supporters are committed to continuing her inspiring legacy through Alex’s Lemonade Stand Foundation, a registered 501c3 charity. Alex’s Lemonade Stand Foundation has raised over $25 million for childhood cancer research. The result — Alex’s Lemonade Stand Foundation has given millions of dollars for childhood cancer research across the country!

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For more information, please visit Alex’s Lemonade Stand Website.

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